Klinični register bolnikov z rakom pljuč Clinical registry of lung cancer patients

Abstract

V zadnjih desetletjih je bil narejen velik napredek na področju obvladovanja raka. Ta napredek temelji na obsežnem raziskovalnem delu na področju novih načinov diagnostike in zdravljenja ter na dobrem spremljanju epidemioloških podatkov o raku preko populacijskih registrov. Register raka Slovenije je eden prvih populacijskih registrov v svetu, ki nam že desetletja nudi podatke o pojavnosti, prevalenci in umrljivosti za posameznimi raki v Sloveniji. S pojavom novih diagnostičnih in terapevtskih metod, predvsem pa z razmahom molekularne diagnostike in tarčnega zdravljenja raka, se je pojavila potreba po dodatnem natančnem vodenju podatkov v okviru kliničnih registrov posameznih rakov. Ti registri omogočajo pridobivanje novih spoznanj o učinkovitosti in varnosti posameznih diagnostičnih ter terapevtskih pristopov pri bolnikih, oskrbljenih v okviru vsakodnevne klinične prakse. Zdravnikom in vodstvom bolnišnic pa nudijo neprecenljive podatke o učinkovitosti in kakovosti njihovega dela. Na Kliniki Golnik smo zato leta 2010 pričeli z delom na kliničnem registru raka pljuč, v okviru katerega zbiramo podatke o bolnikih, diagnosticiranih in zdravljenih zaradi raka pljuč na Kliniki Golnik. Pred meseci smo predstavili prvo polletno poročilo tega registra za leto 2010. Naša želja je v sodelovanju z ostalimi institucijami združiti v tem registru podatke o bolnikih z rakom pljuč, ne glede na to, kje v državi so diagnosticirani ali zdravljeni.

Abstract (Eng)

In the last decades, considerable progress was made in the field of cancer management. This progress is based on extensive research work in the field of new methods of diagnostics and treatment and on careful monitoring of epidemiological data on cancer through population-based registries. Cancer Registry of Slovenia is one of the first population-based registries offering data on the incidence, prevalence and mortality rate of individual types of cancer in Slovenia. The occurrence of new diagnostic and therapeutic methods, and mainly the expansion of molecular diagnostics, have given rise to the need for additional careful management of data within the framework of individual clinic cancer registries. These registries enable new findings on the efficiency and safety of individual diagnostic and therapeutic approaches in patients managed within the scope of everyday clinical practice Moreover, the doctors and hospital managements have thus access to invaluable data on the efficiency and quality of their work. For that reason, the University Clinic Golnik in 2010 started working on the clinical registry of lung cancer patients, where we collect data on the patients diagnosed and treated for lung cancer at the University Clinic Golnik. A few months ago, we presented our first semi-annual report on this registry for 2010. In cooperation with other institutions, we want to supply the registry with all data on lung cancer patients, regardless of where they were diagnosed and treated.